I will, in all likelihood, not be posting there that often, as Tumblr and Reddit are still my primary social media. But I have made this account in the event that Tumblr collapses and/or implodes in on itself.
If you want to, please follow me or bookmark my BlueSky account now! I am very worried about Tumblr becoming unusable in the near future, and we don’t want another Livejournal situation where everyone scatters and we can’t find each other anymore.
Clark and Bruce have been together for a while now, and after a night of patrolling Gotham, Clark stays over at Bruceās place for the first time.
Bruce sleeps like a log for almost 18 hours.
Thatās it. Thatās the prompt.
Also, Alfred and the boys grew a little paranoid when they didnāt see Bruce come down for breakfast or lunch, or go to work, or make a video call. However, no one dared enter the bedroom, knowing that Clark was also there.
Iād need to know more, but if itās training the immune system not to overreact to the presence of an allergen, I suspect theyāre targeting specific protein strands that keep mast cells stable and from degranulatingāwhich is what happens when youāre exposed to a trigger.
So, yes, this could be significant in terms of calming down and reducing the over-priming of mast cells that triggers both normal and idiopathic reactions we see in mast cell diseases.
And even if it doesnāt work (though I canāt think of a reason why it wouldnāt) this is still incredible. Holy shit, what a time to be alive.
Iāve not been able to stop crying for two hours, but it is tears of joy. Iāve waited so many years to see this news. 23 years Iāve waited. I cannot begin to describe what this means to the Huntingtonās community.
One day Iāll write about what itās like to grow up knowing you might have a terminal, incurable illness, and not be allowed to test yourself because āitās such a serious decisionā they donāt want it hanging over you until youāre an adult (as if it doesnāt hang over you as you witness a parent die, and know youāve got 50% chance of inheriting the same illnessāas do your siblings). One day, I will talk about how, in the fear of traumatising children with the knowledge they might be incurably, terminally ill, they also took away their right to decide over their bodies to a degree that is traumatising. One day.
But today I am going to cry. Because itās over. Because no child will ever have to go through the same uncertainty, because at least they will know there is a treatment option available. A treatment option that one of my siblings might come to rely on. With all the shit things happening around us, my childhood hope and dream have been realised. Thatās got to count for something.
This is incredible. Just absolutely incredible good news, and shocking considering how hard progressive neurological diseases are to treat at all.
Itās such a terrible disease. This procedure is technically difficult and the surgery/infusion takes a long time but it is EFFECTIVE and reduced progression by 75% with surprisingly few side effects, and itās expected to be permanent.
Theyāre looking at making it available very soon. I hope it is made affordable enough to treat everyone who has it.
